Thursday, May 30, 2013

Three Week Recap

I'm gonna start off by apologizing . . . I blogged about this huge thing happening in our life, asked for prayer, and then haven't written an update in three weeks.  My bad.

In my defense, there has been a lot going on {understatement of the year} and I have updated facebook quite often, but I realize now that not everyone who follows the blog and has been praying for us are my friends on facebook.  I'm sincerely sorry for the silence!

Day of Surgery

It is hard to even write this because May 8th seems like it was months ago and honestly that whole day is like a blur to me.  A very amazing blur, though!

Chad had to be at the hospital for 5:30 am and had the chance to pray with his mom for a minute before checking in, which I think put both of them a little more at ease.  Even at such an ungodly hour, we already had friends starting what would quickly become our takeover of the surgery waiting area.  Chad's surgeon asked me the day before if I would have any support during the surgery {bahahaha}.  I assured him that I would probably have a village worth of family and friends by my side.  I was right.  :)

From 5:30am until 10 pm when Mrs. Tina was finally done, we had somewhere between 40 and 50 people come by to truly be the Body for our family.  I don't have words for the impact this made, not only for our family, but on others in the waiting room and on our coordinator and surgeons.  {Mrs. Tina's surgeon came out at 10 pm to speak with Mr. Boone and was shocked to still see at least 20 people waiting with him . . . he said we definitely win the award for the most support!}

And that is just the people who were able to physically come to the hospital.  There were literally hundreds of people who were calling, texting, and sending facebook messages that they were interceding on our behalf.  Again, I can't explain how crucial this was for us to make it through an incredibly long and emotional day.

At one point during the day, Lisa and I {best decision EVER to have my bff there to care specifically for me . . . she rocked it} started playing a game to bring a little distraction.  I mentioned that I felt guilty that I wasn't praying each moment, but I just couldn't go there emotionally.  I felt like I was one small step away from completely losing it and focusing my mind on what was really happening in the OR would certainly push me over the edge.

In wisdom, Lisa reminded me that I didn't need to feel guilty . . . prayers were constantly being lifted up.  The Body was stepping up to do what I couldn't in that moment.  I don't know if I've ever been more grateful for God's design of His Church and the fact that we are truly unified to each other by the Spirit.  
So for those who interceded on the day of the surgery and in the days since . . . thank you!

They expected the surgeries to take 5-6 hours, but both ended up being more like 9-10 hours.  This made a long day even longer and caused a little more anxiety as we waited.  Thankfully our coordinator, Jeanne, came out every few hours to give us an update.  At the end of the day, the surgery went perfectly!  Chad and his mom were both transferred to ICU.  Then the real journey began. :)

Mrs. Tina's Recovery

Chad's mom was so sick going into surgery, maybe sicker than we all realized, which has had a drastic impact on the timing of her recovery.  Honestly, we've realized that some of our expectations on what her recovery would look like were not realistic and have caused some disappointment and concern.

Before the surgery, the doctors told us that when a recipient wakes up, up to 90% of their previous symptoms might be gone and they would feel better than they had in years.  This was the picture we had in mind.  

In reality, this is very true internally.  Mrs. Tina's new liver is functioning perfectly and all her liver numbers {except bilirubin} look great.  Her bone marrow is producing blood again.  Her swelling is far less than before.  There has been a drastic change and many previous symptoms are gone.

What we weren't prepared for was that it would take three days for her to wake up from the anesthesia.  We weren't prepared for her to experience so much confusion once she finally woke up and even still three weeks in to her recovery.  These things are evidently normal because of the fact that she was in liver failure, which had already begun to effect her brain.  The doctors haven't been overly concerned and assured us from the beginning that these issues would go away in time.  The problem was that we didn't really expect them in the first place so they hit pretty hard.

Mrs. Tina spent 5 days in the ICU before she was able to be transferred to the TSU {transplant step-down unit} and actually moved into Chad's room right after he was discharged.  Her liver numbers continued to be good, but her bilirubin {the level that makes you jaundice} was still high and actually began to increase.
  
The doctors ordered a scope and found that some of the bile ducts in the liver were blocked, which was causing the bilirubin to remain high.  They put stints in the blocked ducts and expected her numbers to drop immediately.  This didn't happen and the doctors were honestly puzzled.  Mrs. Tina's bilirubin was at 18 {1 is normal} and the doctors planned to do another scope last Thursday to check for more blockage.  We called out for prayer because we desperately didn't want her to have to go through another scope.  She would have to be sedated again, which would mean another few days of her just trying to really wake up instead of being able to move forward in her recovery.
  
We prayed and God answered!  Mrs. Tina's bilirubin began to drop so the scope was postponed.  It has continued to drop and is now, just a week later, at 6.4!

She has been more alert and able to start focusing on standing and walking, which is no small task when you've been so sick and weak.  The other main focus in her recovery right now is eating.  Mrs. Tina wasn't able to eat as she struggled to really wake up, so they have used a feeding tube the last two weeks to get her the nutrition her body needs to recover.  Now we are really encouraging her to start eating . . . and offering to bring her anything she's craving!

Walking and eating are the two main milestones she needs to reach before she can be discharged from the TSU and moved into an apartment near Ochsner.  She'll remain there for a couple of weeks so she can be close to Ochsner in order to get frequent lab work and doctor visits.

Thank you to everyone who has prayed, called, texted, and visited to support Mrs. Tina in her recovery.  Also thank you for continuing to encourage Mr. Boone and Mrs. Tina's parents as they care for her.  It is overwhelming and exhausting to be strong and care for your wife and daughter and they have truly been carried by your prayers!

Chad's Recovery

Not. What. We. Expected.

Seriously, we were way off.  We expected abdominal pain.  We expected fatigue.  
Our expectations were more like "forced down time" and less like the "Man Down!" that we've experienced. :)

The hardest parts of Chad's recovery have been the peripheral issues that we weren't really prepared for . . .

The fact that the morphine Chad was given in the 48 hours after surgery made him itch until he was literally going crazy {and me with him}.  The second night, I had to scratch him to sleep.  All. Night. Long.  We were only two days in and I was sure I was about to have an emotional breakdown because I physically couldn't stand by his bed and scratch his back for another minute.  

The unbearable shoulder pain that evidently comes from them having to pull on his ribs and move things around during surgery.

The constipation.  I'm not going to go into detail, but if you've talked to Chad you've no doubt heard about this battle . . . during surgery he evidently lost the filter between his brain and his mouth and has been oversharing . . . my apologies!  All I'll say is that I've never prayed for poop so much in my life.  And after a week of intense pain, I've never rejoiced over poop like I did then!

The nerve pain in Chad's arm that sent us to the ER in the middle of the night because we thought he had a blood clot or was having a heart attack.  Nope, just the fact that his arms were in one position during the 9 hour surgery and his nerves were damaged.  Might have been nice to know!  This pain took days to go away and made it hard for Chad to even think, much less sleep.

The insomnia . . . brutal.  And if you've experienced insomnia, you know that this can be the thing that pushes you over the edge.  Chad's body needs so much rest in order for him to recover so to be so exhausted, but unable to actually sleep is just too much.  This has produced frustration and anxiety in Chad in the last week and has really taken its toll.  {But it is 10 am as I type this and Chad is still asleep . . . Praise the Lord!}

To top it all off, Chad and I both got food poisoning at lunch on Sunday.  Thank the Lord my parents were in town because they cared for us and the kids for two days while we struggled to rejoin the land of the living!  Food poisoning is awful as it is, but can you imagine throwing up three weeks after your abs have been cut in half?  Miserable.  

Then of course there is still the abdominal pain and extreme fatigue like we expected. :)
 And to wrap it all up with a nice little bow of heartbreak, we've had this conversation 200 times a day, every day . . .
Grayson:  Daddy pick me up?
Chad:  No buddy I can't.
Grayson:  Daddy's bobo hurting?
Chad:  Yep, my bobo still hurts.
                                            Grayson:  Awwwww. {Shaking his head and often with tears.}

Grayson has finally decided that sitting next to Daddy will be sufficient for awhile!  The kids have been such troopers through all of this, but it has definitely taken its toll on them.  They miss being able to wrestle with Daddy and be picked up.  They love having him home, but it almost makes it harder since he hasn't really be in a place to engage like normal with them. 

Chad is recovering well, but as you can see, the past three weeks have been so much harder than either of us anticipated.  But God has been so gracious so see us through . . . giving me the strength to care for Chad {and two kids} and giving Chad the strength to push through the hard.

I had memorized Colossians 3 the month before the surgery and now I know why!  Verses 12 - 14 were my constant prayer as I fought the flesh that threatened during exhaustion and discouragement . . .  "Put on then, as God's chosen ones, holy and beloved, compassionate hearts, kindness, humility, meekness, and patience, bearing with one another and, if one has a complaint against another, forgiving each other, as the Lord has forgiven you, so you must also forgive.  And above all these put on love, which binds everything together in perfect harmony."

God has been most gracious through using His Body as His hands and feet.  Our faith family has loved us well.  Meals, playdates, grass cutting, prayer, encouragement . . . we couldn't have made it without this service and love.

Thank you to everyone who has prayed and continues to intercede on our behalf and serve our family!

It is still just absolutely amazing that doing a living liver transplant is even an option.  I didn't realize this until after the surgery, but Ochsner is . . .

Photo: We saw this sign when we driving into the parking garage at Ochsner Hospital to visit Chad Gilbert (who gave part of his liver to his mom in a living donor transplant). We felt a lot better than we would have if it had said something like "in the top 100" or #147 or some such thing.

We believe it!  Chad and his mom have received the most amazing care through this entire process!  The surgeons, doctors, nurses, and everyone in between have been outstanding and such a great support to our whole family.

This was our request as we headed into surgery three weeks ago . . .

Please pray that as the Body of Christ loves and serves us in sacrificial, radical, and practical ways, the watching world will ask "Why?".  And when they do, pray that we will have the privilege to share with many the life changing Gospel that gives us Hope even in pain and uncertainty and is the fuel for the way the Church is loving us!

This prayer was answered!  God did provide many opportunities for us to share with people in the hospital about the God who led us to this point, the Great Physician who we trust is in ultimate control, and Jesus who gives us the strength to endure.

One of my favorite moments was coming to Chad's ICU room the morning after the surgery.  He was so out of it from the morphine!  He was trying so hard to share the Gospel with his nurse, but said that all he could get out was a slurred "God loves the world!"  I love this man!

Thankfully we've had many other chances {without the drug fog} to write notes of appreciation to  those who've taken such good care of Chad and Mrs. Tina, to bring baked goodies to the transplant team, and to proclaim God's goodness to anyone who will listen!

Again {I know I sound like a broken record} THANK YOU to everyone who has walked with us on this long journey!

Tuesday, May 7, 2013

Surgery, Recovery, & Prayer

I've been meaning to write more details about this journey since I wrote the first post about Chad's opportunity to donate part of his liver to his mom.  And now it's the day before the surgery and I have a to-do list 10 miles long!  

Honestly, most of it won't get done.  And surprisingly I'm okay with that {shocker to you who know how much I love scratching things off a list!}.  Instead of cleaning and organizing, Chad is currently on an adventure walk with our two cuties, we spent all morning with them playing in the pool, and their Daddy is picking them up for hugs and kisses as many times as possible. :)

But in the middle of our last "normal" day together for a while, I did want to give some more details to the hundreds of you who have been praying and encouraging us already!

Tomorrow is the big day!  I can't explain the anxiety that sits just below the surface in our hearts and minds.  We've been able so far to calm our fears with the Word and what we know is true about our God.  Please pray that this Peace will continue {especially so we can get some sleep}!

Chad's mom was already admitted to the hospital today to have certain things done in order to get her body and blood ready for surgery.  Chad has to be at Ochsner for 5:30 am tomorrow and they expect the surgery to begin around 8 am.

The surgeries for both Chad and his mom will be about 5-6 hours, but they will overlap.  Chad's surgery will begin and once they physically see his liver, they will make the final call about whether the surgery can proceed.  {There is only a 5% chance that they will for some reason have to stop . . . please pray for no surprises.}

After Chad has been in for about 2 hours, and if they give the green light, Mrs. Tina's surgery will begin.  Our transplant coordinator, Jeanne, has told us that the transplant is like a beautiful dance.  There will be 3 surgeons with Chad in one OR and 3 surgeons with his mom in the OR next door.  She said that the movement of Chad's liver to his mom and all the steps before and after are seamless, with perfect timing, and done almost without words.  

Please be praying for these 6 men.  Pray that this "dance" will be the greatest performance of their lives!  I wrote Dr. Reichman, who is Chad's main surgeon, a note yesterday just letting him know that we are praying for him.  I know that doctors have to develop the ability to turn off everything else when they walk in the OR.  I also know that this has to be easier said than done!  I'm praying for peace in his life and family, for good health, and for good rest especially for tonight.  

I also shared with Dr. Reichman that because we are followers of Christ, we belong to a family much larger than just biological.  I assured him that hundreds of people will be praying for him and the other surgeons and nurses.  I hope this brings him great comfort . . . although it might have just freaked him out!

We would be so honored if you would intercede with us tomorrow!   Say a prayer when we come to mind or when you see a facebook update.  Maybe set an alarm on your phone as a reminder to lift our family up to the Father.  However you can join us in prayer will be such a blessing to our family!

Tomorrow will be a very long day, but really just the beginning.  

God willing, it will be the beginning of new life for Mrs. Tina!  She will most likely wake up with 90% of her symptoms gone and feeling better than she has in years!  She will be in the hospital for 5-7 days and then will have to remain in an apartment close to Ochsner for about 4 weeks.  Her recovery has a much higher risk than Chad so they like to keep transplant patients very close.  She'll have to have lab work done multiple times a week and see the doctor often as they monitor how her body is coping with the new liver.  Please pray for a smooth recovery, that her body won't reject the liver, that her medication {some of which she'll have to be on for life} will be regulated quickly, and that her spirit and faith will remain strong.  Pray also for Chad's dad {Boone} and the rest of the family as they care for Mrs. Tina during her recovery.

For Chad, however, it will be the beginning of a lot of pain.  :(  He will probably wake up feeling worse than he ever has before and will be in the hospital for 4-7 days.  The surgeon said that there is a 30% chance of complications and that if this happens, it will most likely be during the surgery or in the first week.  Please pray against any complications {infection, internal bleeding, blood clots}.  Needless to say, I feel like I'll be holding my breath for a week! 

My parents are going to be in NOLA to be with the kids so thankfully I'll be able to be with Chad the whole time he is in the hospital.  Please pray that our time together in the hospital will be well spent, even as he recovers.  We will have more time than usual to pray together for the Church {who knows what Chad will be praying when he's on drugs!} and hope to be bold in opportunities to share the Gospel with doctors, nurses, and other patients!

They say that a full recovery for Chad will take somewhere around 6 weeks.  We are hoping that he will recover faster, but he's already had to agree to take it slow and that I get the final say as to when he can get back to work!  He definitely can't pick up anything for 6 weeks, which will be so tough with the kids.  They are used to a very engaged Daddy who loves nothing more than to pick them up or wrestle on the floor.  Please pray for Ava and Grayson as they have to adjust to a new normal during Chad's recovery. 

While you're at it, please pray for me!  Because Chad is such an engaged dad, I'll definitely be feeling his restrictions with things around the house and with the kiddos.  Please pray for strength from the Spirit, patience and gentleness with the kids, compassion for Chad, and a continued daily feasting on the Word. 

We have been so humbled and thankful for how our faith family at Edgewater has poured out love and service to us already . . .

Four men are ready to preach in Chad's absence.  

The staff and others have graciously taken on everything else that needs to be done this month.

  Edgewater is continuing to pay Chad this month even though he will be out . . . what an incredible blessing for us!  

Many families have already signed up to bring us dinner this month {you know I won't turn down food!}.  

A few guys will be cutting our grass each week until Chad is able again.  

Friends have already committed to having the kids over for playdates to give me some time and avoid us all going stir crazy!  

One friend gave us a sacrificial gift to cover my food expenses while we are at the hospital.  

My best friend is spending all day with me tomorrow during the surgery just to make sure I am supported {whether that means I need to cry, pray, laugh, play games, or take a walk}.  

Our entire faith family prayed over us on Sunday and I've gotten texts every day that people are praying.  

Seriously, the list could go on and on. And this is just for us . . . Chad's parents have experienced the same love from their family at FBC Lafayette!

We. Are. Blessed.

Thank you to everyone who is a part of what I listed above.  Thank you to friends and family who are covering us in prayer.  Thank you for being a picture of what God intended as He created the Church.  

Please pray that as the Body of Christ loves and serves us in sacrificial, radical, and practical ways, the watching world will ask "Why?".  And when they do, pray that we will have the privilege to share with many the life changing Gospel that gives us Hope even in pain and uncertainty and is the fuel for the way the Church is loving us!

Tuesday, April 23, 2013

Further Down the Road

Do you have someone that you learn from?  Someone who is a little further down the road than you?  Someone who has walked the life of faith a bit longer?

This faith walk isn't a competition or a race, but it is just plain fact that there are those who have been there before, walked longer, learned lessons . . . and we can receive much sharpening if we are willing to be taught. 

One such person in my life is my friend, Shauna Pilgreen.  If you are Southern Baptist, that name might sound familiar.  You may even have a postcard with her picture on your fridge like me!  
 

Ben and Shauna are church planters in San Fransisco through the North American Mission Board and were featured in Annie Armstrong videos and publicity in the last few months.

While they may be new faces to you, I've had the pleasure of knowing Ben and Shauna for 11 years {and I can't believe it has actually been that long!}.  Ben became the associate director for the BCM at Tech at the end of my junior year.  I only had one year to get to know and learn from the Pilgreens, but they made a big impact!  

We had lost touch for years, but ahhh the beauty of facebook and blogs!  Shauna has a blog that I've been reading over the last year . . . keeping up with the adoption of their daughter from India, seeing snapshots of their life and ministry in SF, and getting a window into Shauna's faith walk.  

Shauna has been faithful to write about a lot of different aspects of her life and faith . . . parenting, marriage, spiritual disciplines, ministry, fun, adoption.  She clicks "publish" and probably has no idea how her testimony impacts me {and others} in such profound ways.

The thing I've learned and appreciated most from Shauna is her intentionality.  This is an area of my life that is often sorely lacking {tell me I'm not alone!} so God has really used her wisdom and practical insight to challenge and encourage me to be intentional in each area of my life.  

I'm reminded of Paul encouraging Timothy {1 Timothy 4:7} to "train yourself for godliness."  Godliness doesn't just happen.  It takes work.  We can't just put off the old.  We must put on the new.  And that takes intentionally being transformed, intentionally pursuing Christ, intentionally walking by faith, intentionally discipling. 

So what has Shauna written that has been so profound?  I'm glad you asked!  I'm going to share four of Shauna's posts that have most impacted how I have been or will be intentional in my faith walk.


In this post, Shauna shared a simple way that her family is daily intentional in prayer for their children.  I don't know about you, but as for me in this area . . . fail.  I do pray for my kiddos, but not often for specific aspects of their future.  

I loved this idea and had something similar hanging by our kitchen table just a few weeks later.  


 I also added the names of missionaries that we support or have sent out from Edgewater.  We eat pretty much three meals a day at the table together so it has been so good to maximize that time in interceding for our kids and for those making disciples in another context.  Ava quickly became the one to remember and ask each day who we get to pray for . . . intentionality in prayer . . . sowing seeds that we hope reap a fruitful harvest in the lives of our kids. 


Ben and Shauna live in SF and two of their boys are in public school there.  Her wisdom has offered peace to my heart as we prepare for Ava to start kindergarten in the Fall at a public school in our community. {Some NOLA public schools have the reputation of being crazy and a bad education for those of you wondering what the big deal is!}  

I loved being challenged in how I can intentionally and prayerfully fight the spiritual battle that rages for the heart and mind of my little girl even {or especially} at school.  I'm thankful for ideas in how to support and show Christ to her teachers . . . not just in word, but also very practically.  I love being reminded of the power of prayer and the power of a praying family.

We actually prayerwalked the property when Ava's school was first being built and Chad told Ava that this is where we hoped she would go one day.  Since then, she has held firm that this is her school.  Life doesn't slow down, so we are going to have to remain very intentional in covering her school and teachers in prayer!

3.  Names

I love this idea, but probably never would have thought of it.  Ben and Shauna write the name of each child in their son's class on paper and hang them on the wall in their bedroom.  Each night those classmates get prayed for.  So simple, but so brilliant!  Can you imagine the transformation of the heart of your child as they pray for the needs of their friends {or those who don't like them} each night?  Imagine the compassion that develops as you talk about those other kids and get to the heart of their needs and what should be prayed for.  I also just love that this intentionally carves out a time each day where you are talking about what is going on at school and in friendships.  The more we can keep communication open, clear and Christ-centered, the better!


This is the most recent life changer {and I do mean that}!  Shauna has been sharing in the last few months about spiritual disciplines . . . what she does, how she struggles, what she is learning.  I had just been confronted by the Lord over my lack of, you guessed it, intentionality in memorizing Scripture.  I knew I needed some sort of goal or system, but didn't know what.  Days later, I read Shauna's blog where she detailed her memorization system in a video . . . I knew that wasn't a coincidence!

Shauna was also doing a giveaway . . . leave a comment of a favorite verse you've memorized and one person would win all the supplies for the memorization system.  I commented of course, but I never win anything.  A week later {I just knew I wouldn't win and was so anxious to get started} I had all the supplies in my basket at Walmart, but ended up putting them all back on the shelf {you know how it is . . . it was the end of the month and there is only so much moolah in the envelope!}. 

That day, Shauna emailed me to say that I had won!  I loved God's work in all the details to get me doing a memorization system that works perfectly for me and keeps me daily intentional in hiding His Word in my heart!

So this is what my table looks like each morning as I start my time with my Savior. 


I won't explain the whole system here . . . just head over to Shauna's blog and watch the video where she explains it all!  I've only been doing it for a couple of weeks, but I can already see the fruit in my life from being intentional in knowing the Word!

So there it is.  Four glimpses into Shauna's faith and life that have blessed me and I hope will bless you.  I don't share this to put Shauna on a pedestal . . . neither of us would want that.  I share because she has passed on what she has learned and I want to do the same.  In His wisdom, God created the Church to build each other up and that those who are further down the road would freely proclaim lessons learned to those a few steps behind.  Thank You Jesus!

And what post would be complete without some pictures of my little loves?!

Grayson has been very dramatic intense OCD excited about pockets lately. :)


He even got Ava to pose for a pic with pocket excitement!



Tuesday, April 16, 2013

God Speaks {4.16.13}

I wrote earlier in the month about how I'm trying to be more intentional with sharing words of Life and how God is speaking {because He is faithful to do so}. 

Here is what He's been saying to my heart recently . . .

the Spirit 

Ephesians 5:18 . . .

Do not get drunk with wine, for that is debauchery, but be filled with the Spirit.

I think a lot of us, me included, can read this verse and think we can check it off . . . I don't even drink, so I'm definitely good on this one.  But as I meditated on this Word this morning, the Lord took it way farther than some wine.  

Getting drunk numbs you . . . to pain, to worry, to fear, to life.  I might not frequent a liquor store, but what other things do I turn to when I am tempted to numb myself?  Do I get drunk on TV?  Drunk on facebook?  Drunk on sleep?  Drunk on food?  I need to take a hard look at what I run to when life is overwhelming that ends up drawing me away from God.

But that isn't where the questioning of my heart can end.  The greater questions is "Am I being continually filled with the Spirit?"  

I can't just flee the drunkenness.  I must pursue the filling.  

And this is where my meditation will continue . . . what does it look like to pursue being continually filled by the Spirit?  Ephesians does a great job of describing a life lived in this way and how it is primarily demonstrated in how I interact and serve within the Body of Christ.  Oh Lord may my life line up with your Word!

my words

Edgewater is studying Ephesians right now and has been issued a challenge to read 1 and now 2 chapters a day each week.  I'm on my fourth time through the book now and it is good.

Today the verse that jumped off the page to me was Ephesians 4:29 . . .

Let no corrupting talk come out of your mouths, but only such as is good for building up, as fits the occasion, that it may give grace to those who hear.

Whew.  Did that slap you in the face get your attention like it did me?  God was speaking loud and clear with this Word . . . I've already posted the verse by my kitchen sink and bathroom mirror and added it to my new memorization system {more on that another day because I'm really excited about it!}.

What made this verse so profound is that today, I read it as a mom.  I had a rough day yesterday, not gonna lie.  I've got so many crazy emotions going through me because of this surgery and everything else going on and yesterday it was just all a little too much.  I didn't want to be around anyone, which is tough when you have two kids.  And is even tougher when your buttons are super sensitive and your sweet blessings are bent on pushing them as many times as possible. :)


 {Grayson has evidently seen enough mommies with babies in a sling so he asked to carry around his buddy like this!}

So yesterday was a long day made even worse by the fact that I was foul.  I even apologized to Ava at one point for having a rough day.  She told me it was fine to have a rough day, but that I still needed to have a good attitude.  Grrrrrr . . . she was so right.  I was being rude and snippy and impatient and harsh when they didn't deserve to be spoken to like that at all.

So then I go and read Ephesians 4:29 this morning and end up in confession and repentance.  Bleh.  I can completely blow it sometimes.  But oh the grace, the kindness that leads to repentance.

I know the way I talk to my kids at times does the exact opposite of building them up.  I can tear them down with just a few words or tone of my voice.  And I can speak the exact opposite of grace.  At times I pour out words of shame and guilt and anger that only serve to push them away.  

Oh how I want to build up my children and speak life into their little hearts and minds!  I want to speak grace into their ears so that their hearts are softened to the grace of our great God.  I want to speak with the same kindness and gentleness that God uses with me when my heart needs to repent or needs tender care.  May these be the words I speak to my little loves!

My eyes have been opened to these realities before, but a reminder is always good and needed.  But what stood out most to me today was the first description of this talk . . . corrupting.  This literally made me shudder.

There will be no shortage of evil and sin and the desires of this world that will wage war to corrupt the minds and hearts of my children.  I never want my words to be on the wrong side of this battle, useful for the enemy in corruption.  

The weight of that reality is heavy, but God's grace is greater.  And it wouldn't hurt to keep my mouth closed a little more often either. :)

How has God been speaking to you?

Sunday, April 14, 2013

Living Donor

We generally have a lot going on in our life.  Well . . . things are about to get crazier!

I haven't really talked about it on the blog before, but Chad's mom has been very sick for the last year and a half.  She was diagnosed at the end of 2011 with Autoimmune Hepatitis.

Looking back, we can see that Mrs. Tina had experienced symptoms for a long time, but they had been easily explained away as from some other cause.  Chad's mom isn't much for doctors (who is?!) so the sad reality is that the disease went undiagnosed for many years when there were no symptoms.  Once the symptoms got bad enough for her to go to the doctor, the damage to her liver was already very severe.

Mrs. Tina spent a week in the hospital in January 2012, which was such a scary time for everyone.  At that point, she was officially put on the liver transplant list.  The last year has been full of ups and downs in her health.  I never realized how important the liver is in your overall health until seeing how many other issues can arise when the liver isn't functioning well.

Our hearts have been broken as we've seen Grammy suffer complications, pain, and a radical change in lifestyle during the last year.  In the midst of it all, though, her faith has remained strong.  Mrs. Tina is one of the quickest people I know to proclaim God's faithfulness, goodness, and provision.  Her faith has challenged and encouraged my heart!

Almost a month ago, Mrs. Tina was in NOLA for an appointment and ended up back in the hospital for a few days.  At that appointment, her hepatologist mentioned on option that had never been brought up before . . . a living liver donation (Ochsner has just begun their program in the last year and has only done 3 so far).

The liver is amazing.  Really, God is amazing.  Our Creator made the liver able to regenerate {in just 8 weeks!}.  This opens up the door to a living donation instead of waiting on the transplant list for an organ donor's liver {20% of people die while waiting on the transplant list}.

As soon as Chad's mom said that the doctor mentioned a living donor, Chad said, "I'll do it."  He told me that in that moment, without hesitation, he just had this overwhelming feeling that this was right.  Does this sound familiar?  Just like when I shared the HIV info with him regarding our adoption . . . when Chad senses in his spirit that the Lord is speaking, He is quick to obey.  I love this man. :)

A living donor coordinator came to Mrs. Tina's hospital room while Chad was with her to talk about the program.  He was also able to speak to a surgeon that week to get a lot of questions answered.

To say these conversations were intense for our whole family is an understatement.  The hope that this transplant could bring to Mrs. Tina is priceless.  Most recipients wake up from the transplant with 90% of their symptoms gone.  GONE.  Chad's mom sobbed (okay, we all did) when we heard that fact.  She hasn't felt well in so long, so the thought of her being done with the endless complications and this draining disease is almost too much to comprehend.

On the other hand, the donor wakes up from the transplant feeling worse than ever. :)  It is a major surgery (5-6 hours) with a long recovery (6-8 weeks).  It is one of the few times in medicine that they will take a well person and do something to bring them pain.  There are risks, like with any surgery.  The cost must be counted.

Since the moment it was mentioned, this has been the topic of discussion of our family.  Counting the cost.  Asking questions.  Gaining clarity.  Praying.  Crying.  Hoping.

After two weeks, we were all on the same page about moving forward.  Chad and his younger brother, Blake, were both willing and ready to be assessed to see if they could be a donor.  For several reasons, we decided together for Blake to be assessed first.  Blake had lab work and a CAT scan done on April 5th, but within hours the doctor called to let him know that his liver didn't have enough volume to be eligible to donate.  This is nothing Blake has control over, but the news was still crushing.  Our hopes for Mrs. Tina are so high, so this roller coaster has been so hard for everyone.

Once Blake got the news, Chad called immediately to ask to be assessed.  He spoke with the coordinator on Monday, April 8th and by that afternoon she had appointments set up for the next day.

The rest of the week is honestly a blur.  Chad had a total of 13 appointments, 8 on Tuesday and Wednesday alone.  It was important for me to be at most of these as we would be meeting with the surgeon, the coordinator, the social worker . . . and of course to give Chad someone to look at so he didn't pass out as he got lab work and IVs!  

We were so grateful to all of our friends who stepped up to watch the kids at short notice so we could make it to all these appointments!  Ava and Grayson had 6 babysitters in just 2 days . . . that is some kinda love and service from the Body right there!

Chad's CAT scan was Tuesday night so we expected to get word about his liver volume on Wednesday.  We met with the surgeon on Wednesday afternoon and he told us that everything looked good so far.  Whew . . . I think I had been holding my breath all day.  He needed to look at the CAT scan a little more, though, before he gave us the final answer, but promised to call later that night.  

We got the call while at church, but it was to tell us that something was wrong with the CAT scan disc and he would have to try again the next day.  AHHHHH!  We were exhausted (thanks to a 6 am MRI appointment) and the anxiety of waiting was taking it's toll.  

Thursday we waited. And waited. And waited.  No call back.  Chad went by the transplant office after another appointment and was told that the surgeon was off.  Now I'm fine with people having a day off.  But don't tell someone you are calling with life-changing news and forget to mention that it will be AFTER your day off!

Again, Friday morning was spent in agony.  Chad literally had his phone in his hand at all times.  It rang often, but it was usually someone in the family calling so see if we had heard anything yet.  We were all emotional wrecks.  I just wanted to KNOW.  I wasn't letting myself go down the road of surgery until I knew that we would even be walking that road.  I was absolutely sick at the thought of hearing a "no" because of our hopes being crushed.  Only 25% of people who get assessed can actually end up being a donor.  Our odds weren't good.  

Finally, at 4 pm on Friday, the doctor called to give us the YES!  Everything with Chad looks good and we are moving forward (the delay was a technical difficulty with the CAT scan results . . . get it together people!).  

Unless something changes, the surgery is scheduled for Wednesday, May 8th. 

It is better for Mrs. Tina to have the surgery as soon as possible so she doesn't chance getting too sick to be eligible.  We are also in favor of asap . . . I'm still praying we'll be in Ethiopia this year so I want Chad recovered and ready to fly!

While so thankful to have a yes, our emotions are hardly stabilized.  We are so grateful that this is even a medical possibility.  We are beyond excited about what this will mean for Mrs. Tina's health and recovery.  Hope is such a precious gift from God.  We are looking forward to Grammy getting to enjoy a full life for many years to come!

At the same time . . . holy cow this is big.  I was texting someone that we got a "yes" and had this internal dilemma about using an ! at the end.  I'm so excited, but do you really use an ! when talking about your husband having a massive surgery?  :)

I'll go into details about what all this will mean for Chad and our family in another post, but here is what is important to know . . .

There are risks.  But Chad isn't being risky.

At least for us, the difference is big.

There are risks with any major surgery.  Complications can occur.  Crazy, unexpected things can happen.  Our greatest fears could be realized.  But these risks are highly unlikely.  There is a 99% chance that the surgery will go beautifully, Chad will recover well, and he will have no lasting effects {except for a huge scar, but what guy doesn't love a battle wound!}.  Those odds aren't a gamble.  It is almost a sure thing.  It is a reasonable risk.

If the statistics were different, if it was really risky, if Chad was likely to lose his life . . . we wouldn't do it.  Chad's mom and dad wouldn't let him do it.  The doctors wouldn't even let him do it. 

At the end of the day, we are walking forward in faith and trust in our great God.  We have the highest hopes of both Chad and his mom making full recoveries.  We trust that God can and will write a better story for our lives than we could ever imagine.  We pray that this whole process will be used to proclaim God's glory.

Isaiah 26:3 is the Word that I've been proclaiming over and over . . .

You keep him in perfect peace whose mind is stayed on you, because he trusts in you.

 Please pray this for us.  Remind us of God's character.  Encourage us with the Word.

We would love your prayers for our whole family as we spend the next few weeks preparing physically, emotionally, practically, and spiritually for the surgery and recovery of Chad and his mom.  

{Just a side note for anyone reading that knows Chad's family personally . . . I know you might want to jump in your car right now to go visit or pick up your phone to call.  With great love, I'm asking you to refrain.  If you know Mrs. Tina, you know that she is an incredible hostess and loves nothing more than to have friends come visit and talk for hours.  That hasn't changed!  But she is very sick and extremely exhausted.  Her heart would love to welcome every visit and phone call, but her body just isn't up to it.  Some better options for now would be to send her an encouraging letter (221 Karen Dr., Lafayette, LA 70503) and to faithfully pray.  Thank you!}

Tuesday, April 2, 2013

God Speaks

God speaks.  

He spoke the world into being.  Scripture records how He has spoken to His people since Adam and Eve were created.  He spoke to and through His prophets.  

Then the Word became flesh.  Jesus is Truth and spoke Truth.  

The Spirit of God inspired the Word of God that we are privileged to read and study.  The same One who inspired it, now teaches us, bears witness to Christ, and opens the eyes of our hearts to understand.

I've been overwhelmed with this truth lately.  All that we understand about life and God is because of His divine revelation, because He has chosen to speak to those who don't deserve to hear His voice.  Grace upon Grace.

I've also been reminded lately of how powerful it can be when we share how God is speaking.  

I can so often choose to talk about things that don't matter when spending time with friends.  I can share a common platitude when someone is struggling.  I can fan the flames of frustration or hurt when someone is venting.

What if I shared words of Life instead?  What if I encouraged dear friends with what God has been teaching me through the Word, praying it will edify their hearts?  What if I shared the only Truth that will actually bring hope to those struggling?  What if I trusted the Spirit to give me the words to bring someone to the Cross and the Empty Tomb when they are angry and hurt . . . to play a part in moving them from darkness to light and life?

Cause I'm not gonna lie . . . there are days when I just need someone to walk up to me and say "His mercies are new every morning.  Great is His faithfulness."  I need that kind of friend so I want to be that kind of friend!

Just last week Chad was on the phone with my mom.  She shared with him what she had been learning that week.  She couldn't have known it, but that testimony was a timely word for Chad, speaking right to an issue of his heart.  He got off the phone, confessed, repented, and worshiped.  All because God had spoken and His daughter had proclaimed it.

I want to develop a discipline of proclaiming how God is speaking to this undeserving heart.  It isn't that I never share {some of you may be thinking that I do share . . . maybe too much!}.  But I want to be more intentional.  Ready at a moment's notice to speak words of LIFE to the dead, broken and lost, but also to my weary brothers and sisters following after Christ.

 So here are a few things that God has been speaking to me lately . . .

humility

God has been confronting me with my pride for months, gently and consistently.  As I've prayed recently about wanting to be used by Him, but my pride getting in the way, He has spoken twice so clearly that I felt I could almost audibly hear His voice.

- Let your prayer be not that you would be exalted among those who know, but that Christ would be exalted among those who don't.

- I will use a jar of clay, but I will never raise a golden calf.

Ouch, right?!  Remember how Hebrews 4 says that the Word is living and active?  We love that.  But it also says that the Word is "sharper than any two-edged sword, piercing to the division of soul and spirit, of joints and of marrow, and discerning the thoughts and intentions of the heart." That hurts.  So, so good, but painful nonetheless!

prayer

Matthew 8:5-13 shares the story of a centurion asking Jesus to heal his paralyzed servant, but also recognizing Jesus' authority and the power of a simple word spoken from the mouth of the Savior.  Verse 13 is where God leveled me ...

"And to the centurion Jesus said, "Go; let it be done for you as you have believed."

Jesus didn't say "as you have asked" as I would have expected, but the focus and healing was based on belief.

Sometimes I just don't ask.  But how often do I ask God to work without truly believing that He can and will?  Talk about changing your prayer life!

knowing God

Yesterday I was reading the Word in three different places, but God was speaking the same Truth.  I love seeing how the Word is ONE story pointing my heart to God!

- In just the first 24 chapters of Ezekiel, the phrase "then you will know that I am the Lord GOD" is used 39 times.  That repetition has obviously caught my attention . . . God is concerned that His people {and all people} would know who He is, that He is the LORD.  

Chapter 24 though took it even further.  God told Ezekiel that He was going to take his wife, "the delight of your eyes," and that Ezekiel couldn't mourn her death.  God gives the reason as He spoke to His people in verse 24, "Thus shall Ezekiel be to you a sign; according to all that he has done you shall do.  When this comes, then you will know that I am the Lord GOD."

Am I willing to be used by God so that all will know that He is the Lord?  Am I willing to sacrifice my "delight" so that others will know?

- Matthew 10 records Jesus' instructions to the 12 disciples as He sends them out to proclaim the kingdom of God to Israel.  Jesus paints a pretty rough picture for them . . . sheep among wolves, being flogged and dragged into court, being hated by all for the sake of Christ, persecution, death, their own families becoming enemies.  Verse 38 sums it up, "whoever does not take his cross and follow me is not worthy of me."  

It was a call to die to self.  Die so that others may know.

Am I willing to die to self so that others may know Christ?  Do I fear nothing, not persecution, hatred, isolation, even death, but count it all a loss for the sake of knowing Christ and making Him known?

- 2 Timothy is Paul's deathbed letter to Timothy.  He encourages Timothy to persevere in the faith and follow Paul's example of a life poured out in worship to God.  Paul has been through a lot as he has followed Christ {understatement of the year!}.  

But even at the end, his focus is still on the call that has been the driving force of his life.  2 Tim. 4:17, "But the Lord stood by me and strengthened me, so that through me the message might be fully proclaimed and all the Gentiles might hear it." 

Have I given over my life to making Christ known to all nations?  Do I realize that eternal life is to know God {John 17:3} and that God desires all people to be saved and come to the knowledge of the truth {1 Tim. 2:4}?  What am I doing about it?

Do you remember that song, "All of life comes down to just one thing.  That's to know you oh Jesus and to make You known."?  I used to be bothered because the writer says there is one thing, but he has an "and" in there, which clearly means he's talking about two things . . . 1. know Jesus. 2. make Him known.  Right? Wrong!

There is just one thing.  To know Jesus IS to make Him known.  You can't separate the two.  A disciple is a disciplemaker.  

I know this.  But I loved hearing God speak this Truth to me through three different parts of the Word yesterday.  It reminded me that the Word is One Story about One God declaring One Mission . . . to know Him and make Him known!

So what has God been speaking to you?  

Let's encourage each other!  But if you don't share it on here, be intentional to share words of LIFE with someone in your life today!

Thursday, March 28, 2013

Newness: Blog Design and Waitlist Number

So . . . whatcha think?

{If you love it, feel free to comment.  If you don't, it won't build me up in any way to know that.  Just sayin'!  I've been shocked, especially this week on facebook, at the things people will say online . . . like they aren't actually talking to a real person with feelings.  So let's just share happy thoughts, okay!}

I really love the new look.  I'm so blog/web/design illiterate . . . as you probably noticed from the state of my blog previously {I could never figure out how to get our family picture to be less than ginormous.  That's why I had a picture in the header from before Grayson even turned 1.  I tried a few times to change it, but everything I did made it look worse.  Pitiful.}

So I enlisted the help of Leigh, an adoptive mama who I "met" through our agency facebook group who has a blog design business (The Crazy Cocoon).  Leigh also donates 15% of the profits to help a family fundraising for an adoption.  A good looking blog {finally!} and helping a family bring a little one home . . . can't think of a better way to spend the last of my birthday money!  

Leigh did such a great job . . . she listened to what I wanted, did a lot of design options, was patient with me as I realized that I really had no clue what I wanted, and then created what you see now when I finally just told her to quit listening to me and make something beautiful! 

If you have been thinking of getting a new look for your blog or starting one, I would highly recommend getting Leigh to help you bring it all together!

Speaking of new, we got our new waitlist number for March . . .

 


 Yep, #90.  

And by the way, that is a big fat lie.  

I don't love the 90's.  We've been in the 90's since our November update.  I'm praying that next month we'll finally be out of the 90's.  I might even throw a party.  We can dress up in 90's garb, listen to "oldies", and celebrating leaving them behind! :)

I don't say this often enough . . . thanks.  

Thank you to everyone who prays for our sweet Easton and for our family while we wait.  

Thank you to those who ask for updates or about how we're doing in the wait.  It can be hard to answer when waiting stinks and there is no news to share, but we still really appreciate when we know you remember and care.  

Thank you for still sporting our adoption t-shirts and hopefully sharing about God's heart for orphans and more importantly sharing about the adoption available for the children God created and loves  through Jesus' life, death, and resurrection.

Thank you.